- I have a child with dyslexia – can you help me?
- The school doesn’t recognize dyslexia what can I do?
- Why can’t my child read – does she have dyslexia?
Parents (and children) have long been frustrated at the school’s failure to identify children with dyslexia, to provide school-based services, and to effectively teach these children with research based programs.
Decoding Dyslexia, launched in 2011 by New Jersey parents, is an excellent and inspirational story about how a small group of parents banded together to change education in their home state and in other states.
This group needs to go viral!
DD-NJ parent members hope to establish a national DD entity and movement to help parents in every state get involved with creating positive changes for dyslexic students.
Start Decoding Dyslexia in Your State
Since the NJ launch, there are now more than 30 Decoding Dyslexia state-based grassroots parent organizations.
Here’s the Decoding Dyslexia NJ How-to Guide to get a grassroots movement started.
If your state already has a DD group, join today.
Contact DD-NJ directly at info@decodingdyslexianj.org
Learn more about the DD movement from this article by Kyle Redford, Education Editor at the Yale Center for Dyslexia and Creativity.
My child was misdiagnosed as being intellectually disabled, after getting her reevaluated over summer break we found out that my child is actually dyslexic. I’ve been trying to fight this battle for years to prove that my daughter isn’t I.D. and the middle school kept brushing me as if I didn’t know I was talking about. I finally found the right help and I had requested for my daughter to be reevaluated in the fall of 2023. When i had asked about getting my daughter reevaluated, the individuals that were involved in the ARD process kept pushing me off until the end of the school year which resulted in the reevaluation taken place during the summer. The results from the evaluation came in towards the end of summer break.
I had reached out to the special ed. department at the middle school to go over the results of the evaluation and to get some answers as to why they never tested my child for dyslexia. The middle school told me that the high school has to handle the situation because my daughter is no longer a middle school student. Now we are having issues with the high school. It seems as if no one has an education plan for my child so she spends most of the day just sitting on class. Being in a life skills setting, in a restrictive environment has had a major impact on my daughters life inside and outside of school. I want to take legal action and I don’t know how. My daughter is determined to learn but I don’t know get her the right resources and support. I need some guidance.
I am so upset to read this. I am a retired TX special educator, and work for the state parent training and information project. The federal department of education funds projects in every state to assist parents. We have staff throughout the state. You can find the project, and the staff person for your area at https://prntexas.org/ If you have any problems reaching someone you can contact me at cnoe59@hotmail.com
Seeking help! My daughter was not diagnosed with dyslexia until late because they refused to test her. She missed almost all coding training and now struggles so much to keep up with writing but is refused help or even a list of resources.
On the flip side, she is gifted in math but they will not advance her because “you should not want her in a hard class if she is already struggles in writing.” She is so bored in math and is now becoming disengaged in learning completely. I do not know where to find an advocate and the school system in Texas offers no help.
Does anyone know where to turn to?
Hi Kelly. On this Blog, you will often find Chuck Noe, who works for the TX Parent Training and Information Project, answering questions and assisting parents. He may not be the person who assists in your part of TX – so please go to http://prntexas.org/about-prn/find-your-pti/ to find the regional coordinator who works in your area. Be sure to give them a call.
Also, for advocates and more resources, scroll through the directory of listings for TX on the Wrightslaw Yellow Pages for Kids. http://www.yellowpagesforkids.com/help/tx.htm
Thanks for providing Kelly with our contact info. Our staff person in her area can assist her. I work with all of our state staff to support them. TX has law requiring services for students, but some schools do not do a good job of implementing it. Kelly, if I can be of help to you, I am at cnoe59@hotmail.com
MH – It definitely sounds like you have a case of FAPE to me however I am not an attorney. AT this point if you have tried everything to get appropriate accommodations it may be time to get an advocate or an attorney. I would not let this go. It only can get worse. Our youngest son was dyslexic and was not diagnosed until very late. By the time they gave him appropriate accommodations is self esteem was shot and he had to go an extra year after his normal graduation to catch up.
Help! What can parents do if they have been told their child is not dyslexic (“only” LD Reading and dysgraphia) due to not testing outside of average for PP or RAN, yet teen’s decoding and spelling, writing, and math skills are behind grade level any where from 2nd grade equiv. /GE, 4th GE, 7th GE…student is at least 3 to 8 years behind, and school refuses to provide a systematic and research based Reading Program and math remediation services, yet student is identified previously as a child with OHI/ADD-ADHD, and as of this year now id’d as LD in Reading and Writing (subsequent to an independent eval at the end of last school year), and school has dropped students accommodations (extended time and distraction free location.) How can anyone say student is receiving appropriate instruction each year if the student is still so far behind!
Thank you so much Pete and Pam Wright for featuring the Decoding Dyslexia movement on Wrightslaw.com. I can say from personal experience that meeting Pete at one of your TX conferences and receiving encouragement from him to keep advocating for both of my children plus the help I’ve received from several of your books including FETA have been instrumental in helping me to become the strong advocate I am today.
Thank you so much for all that you do to educate parents about IDEA, 504 and special education laws as well as spur them to ACT on behalf of their own children in IEP and 504 meetings. Please keep up the good work as we will continue to do for dyslexic children on behalf of Decoding Dyslexia now in 38 states across our great country!
In kind admiration,
Lyn
Decoding Dyslexia Texas
Parent Volunteer Leader